A gift of self-sufficiency: I got mechanical advantage for Mother’s Day

For Mother’s Day, in addition to a new Lego set to add to my part of our family’s miniature neighborhood, my kids worked together with their dad to solve a problem that plagues me when my arthritis symptoms flare.

Implementing one of the simple machines so fundamental to all efficient mechanical work, they gave me a lever. That’s right, I got the gift of mechanical advantage for Mother’s Day.

Shower handle - 1

It’s hand-crafted and lovingly decorated, too. With Sharpie, which definitely won’t show up in the laundry after this. I had to blur out the part where they made personally identifying marks on my gift. Just in case I forgot who made it for me, or gave their less artistic father too much of the credit.

Is this the most elegant of DIY home improvement? Perhaps not, but a bathroom remodel is outside the budget and the stark reality is that residential plumbing fixtures aren’t always easy—or even possible—to operate with arthritic hands.

Lego Diner set - 1

I haven’t had the time plus hand dexterity to begin building the fun part of my Mother’s Day gift, yet. Much to my younger guy’s chagrin. My lever, on the other *ahem* hand, has been used every day.

That is a gift that is easy to appreciate.

I’m kind of worse than average at pretending childish efforts are masterpieces or displaying scrawls on the fridge in a place of honor. I had no problem going with clutter-busting digital posterity by photographing then trashing stacks of preschool efforts.

This useful lever, however, fills me with a glow of pride. My kids made something real to help someone else accomplish a task. That’s heady stuff.

I love the Maker mindset and hope cultivation of same is one of the gifts we manage to bestow on our sons.

Thank you, boys, for thinking of me. And thanks again for easing a daily problem with which I struggled. I love my lever at least as much as I enjoyed the chocolate chip pancakes.

Business Premier eases chronic pain on 13 hour Air New Zealand long haul flight: Part 1 (OneUp upgrade bid win)

On the economics of getting into business class for members of the 99% with chronic pain: how I did it for 37% of the paid fare with an upgrade bid, and why every penny was totally worth it.

I didn’t know until I arrived at LAX for my 13 hour flight from the USA to Auckland that my bid for upgrade to business class had been accepted. Air New Zealand might surprise you with such information at the very last minute. Luckily, this is the best kind of surprise.

I am a frequent flier in US domestic economy who occasionally splurges or upgrades with miles/status to first class. I also live with an autoimmune disease and chronic pain.

In spite of this, I continue to indulge my love of travel as often as I can. Now, however, I must sometimes make adjustments to accommodate my body’s varying demands.

What follows is my assessment of a very long haul flight in the Business Premier cabin. I’ll try to specifically address the experience of a traveler with chronic pain.

While I’ve found a plethora of reviews sharing the opinions of healthy business and luxury flyers, my own sometimes odd and very specific wonderings are rarely addressed.

Air NZ awards upgrade bids up to the last minute

Last year’s Swiss International Airlines (SWISS) upgrade from economy to SWISS Business was awarded several days before my flight. SWISS may even have provided a full week’s notice.

This time, I received a “too bad, you lost” email from Air New Zealand in the days before my trip. I took off from an intermediate stop at PDX with no knowledge of the highly beneficial change of plans.

Try to imagine my delight upon receiving a text message of congratulations for having my OneUp Business Premier upgrade bid accepted by Air New Zealand at the last minute. I learned of it as my Alaska flight touched down in Los Angeles and I resumed cellular connection to the world.

Having chatted with my nearest seatmate about our respective travels during lunch on Alaska 568, I couldn’t help but turn to her to share news of my good fortune:

“I just got the upgrade from Premium Economy to Business Premier for the long flight to New Zealand!” I crowed

“That’s great!” She replied. “Now your husband won’t have to feel guilty or to share his better seat.”

Air NZ Business Premier pix - airport espresso

It was reason for both DH and myself to celebrate, indeed. He is a gentleman, and he worries about me.

Of course, a man who will wait in line to buy an espresso for his tired wife in a busy airport even though he thinks caffeine is a pernicious addiction like heroin that shouldn’t be catered to or socially acceptable will always give his seat up to a lady.

To be crystal clear, however, on our return, when we were seated in different classes of service, I never did ask him to shove over or swap with me. I spent 13 hours in Premium Economy flying AKL-LAX towards home. I’ll add a link here to my post on the subject once I’ve finished writing it.

Continue reading

Craft a travel capsule wardrobe color coordinated with key accessories

An unexpectedly useful feature of my Ahnu Sugarpine sneakers—which usually boast one main and two contrasting colors—is as a guide for crafting well-coordinated travel capsule wardrobes.

Wardrobe quick August escape shoes - 1

Ahnu Sugarpine in soft blue, peridot, and coral mesh

It may be easier to stick to a neutral palette or always wear black, but my personal style is more ebullient. When you want to wear lots of color, and your outfit artfully combines three vibrant hues as shown on your shoe, you can look really pulled together* instead of clownlike.

I learned this trick as a crutch for home decorating: buy a beautiful patterned object or fabric first, then match paints to your well-designed piece instead of vice versa. It’s easier to get a certain shade of paint than an exact tone in a fabric, and often a lot cheaper, too. Every shade of paint costs about the same per gallon.

Why do I start with the shoes?

Along the same lines, since my choice for shoes is limited by practical circumstances, it is often much simpler to shop for the rest of my clothing to go with the footwear. A simple t-shirt or scarf in a particular shade is also much cheaper than a pair of shoes, and the color selection is almost always wider.

Living with chronic pain—specifically joint pain in the small joints like toes and a foot that once broke and healed funny—means I require custom orthotic inserts to take the pressure off the sensitive parts of my feet. These inserts demand to be worn with a supportive, enclosed shoe.

My podiatrist recommended New Balance sneakers, but I felt constantly sad when forced to wear them as my primary footwear.

I was always aware of my feet; they were blazing beacons of my infirmity. Most tennis shoes are so… sneakerish. Sporty ones made me feel like I was wearing a costume. Plain leather ones struck me as a weird joining of the geriatric with the athletic. They are not me.

Understand that I owned zero pairs of lace up athletic shoes from puberty through young adulthood. My leather walking shoes were Mephistos or Clarks and trended classic/European. After I had kids, I wore leather Merrell Encore mules because they slipped on faster.

None of these high quality brands have worked for me since my feet became problematic. In my old shoes, I can’t complete a trip in and out of the bank, say, without triggering pain that will bother me for days to come. I really must now wear a shoe with comfort features most often found in athletic styles.

Wedding shoes - 1

My wedding shoes were white leather ballet flats with purple ankle ribbons to match my bouquet

Before foot problems, when I dressed up, I wore simple ballet flats in nude, brown, or black. I wore white ones under my wedding gown. I have only rarely tolerated heels as it isn’t in my nature to accept pain for beauty.

I didn’t find self-expression through my shoes. I chose to draw attention closer to my face, hoping to draw the eye to where the brain makes me really interesting.

Anyway, that was the core of my style for most of my adult life.

Today, most of the time, and any time my feet are in pain, I wear Ahnu Sugarpine sneakers or boots.

Ahnu shoes sneakers

Ahnu Sugarpines: back row, waterproof; front row, mesh

I’ve got quite a few pairs now, even more than are shown in this photo from last year. I most often wear the five pairs on the right, especially when I travel. Either a neutral (grey or taupe) or colors found in a peacock feather (teal, yellowish green, purples) best suit my typical travel capsule wardrobe.

Though these particular sneakers suit my need for a flexible yet supportive shoe as dictated by my podiatrist, it is the joyful combination of the Sugarpine color schemes that makes them my favorite. If I’m going to wear a bulky athletic shoe, at least make it an exuberantly colorful one.

Travel capsule wardrobes inspired by Sugarpines

Following are examples of how I let my shoes direct the rest of my wardrobe.

This first is one complete outfit I chose to wear aboard a plane for a long flight. It emphasizes the purple in this often worn pair of waterproof Sugarpines. I have teal in both airy mesh and waterproof versions; I wear this color a lot.

travel outfit

Travel outfit to wear on plane: lightweight jeans, tank, cardigan, puffer vest, pashmina

This second combination pleases me best when paired with my peridot/acid green Sugarpines, but also works with the teal shoes shown above pretty well.

capsule wardrobe CA SF autumn - green wrap tops Twilly - 1My trusty teal Sugarpines have helped me coordinate outerwear, as well.

This woven straw Sunday Afternoons. special edition hat is a favorite for sunny summer travel in the city where a big brim is more of a museum/restaurant hindrance than protective shield against strong sun. They’re an Oregon company, to boot.

You can also see that I have both a lightweight down coat (purple, above) and a water shedding Duluth Trading Co soft shell† (teal, below) to literally. cover me for any kind of inclement weather during my travels.

And here’s a very different color scheme that I might employ when I want to be a little less vibrant during a journey. These Sugarpines were brand new, so I still had the box with the specific color name to share: Alder Bark, a.k.a., taupe.

I have a pair of Ecco boots in a similar taupe/mushroom color. While not something I could designate as a walking shoe at this stage of my life, they are sufficiently comfortable for me to wear them out to dinner or in other situations where I might prioritize style over support.

The Angelrox.gloves paired with the shoes are showing two of their colors: Cacoa and Nude. I’ve written at length about how much I love this woman owned, made in the USA clothing company in Maine for color coordinated, comfortable pieces. Combined with a few touches of vibrant Violet, this is a palette I’m just starting to explore for travel. No small part of it is my joy at having the boots to wear when sneakers aren’t appropriate!

Here’s a close up of Ahnu’s purplish rubber sole together with an Angelrox shawl peeping up at the bottom of the shot in the shade they call Violet. Those are the mesh Sugarpines in teal on the right.

shoes for capsule color coordination alder taupe Angelrox - 3

Though the wardrobes I’ve shown demonstrate very different levels of “energy” in terms of brightness and how aggressively I’m exerting my enjoyment of colorful clothes, a surprising number of accessories can bridge them both. For me—admittedly no fashion maven—it was beginning with my wardrobe of Ahnu Sugarpine shoes that guided me toward my now heavily traveled set of useful yet stylish accessories.

Of course, a favorite scarf or shawl—or an even more vital health related accessory like a wheelchair or walker—could represent one’s starting point. The key point I’m trying to make is to make the best of what you must keep about your person; if you’re fortunate enough to have a completely whole and healthy body, you get to enjoy the privilege of starting with anything you love.

My own grandmother employed a shiny, dark red walker toward the end of her life. It was a beautiful color, and, if I required such a device, I’m pretty sure I’d be shopping for accessories to complement it rather than trying to make the thing blend in.

Is there anything worse than drab, putty colored computer, medical, and office devices? Not in my world.

Color makes me happy. I believe that surrounding myself with the colors that I love improves my health, mentally, at least, and probably physically, too. Following your bliss can be taken both figuratively and literally.

Travel can also be stressful, no matter how much one loves it. One way I’ve found to focus on the joys of the journey is by making things pretty where I can. My bag feels just a little bit lighter over the miles when I love it and everything inside.

Colorful travels!

* A family friend exclaimed about this when I saw her during a recent visit home: “The lining of your bag even matches your outfit!”

Yes, yes it did. I’m tickled every time I pull that level of coordination off. It pleases me greatly. If I can even match my underwear to what’s on the outside, I feel like a downright fashion genius.

Hey, we all need hobbies. This happens to be one of mine.

I wore them happily enough for exercise! It’s a fine brand.

Once you’ve started gathering a travel wardrobe that adheres to a particular color scheme, it gets easier to snag deals on pieces you want or need when they’re available in your palette. My rain jacket was a closeout at about 50% off its retail price.

What I wore in New Zealand: summer capsule wardrobe for 10 days out of Christchurch

Nothing, not even living through the experience, will reconcile my mind to a summer capsule wardrobe for a February trip. That’s the reality of visiting the antipodes, however, and it was quite a treat to leave the wretched winter weather of New England for a respite in New Zealand, however brief.

Even 10 days is brief when you’ve flown 9,300 miles to get there!

NZ capsule wardrobe pictorial accessories - 1I planned a wardrobe for this trip,* and then, after some reflection, cut it back further to roughly what’s shown in the first image. As I traveled with it, I realized that it was, in fact, a tiny bit larger than it needed to be. I wore all but one miniscule garment that I carried, though, and we weren’t burdened with an unmanageable amount of stuff.

NZ Hagley Park me walkingMost important of all, I had what I needed to be comfortably dressed throughout the ten day trip. I’m a traveler with joint pain and an autoimmune condition who remains bound and determined to make it to more corners of the globe. Smart packing isn’t a hobby for me, it’s a necessity.

NZ capsule wardrobe - model tunic hatThe week before we arrived, our primary destination, Christchurch, baked in 90º+ F temperatures, but we had a cooler trend and the remnants of a cyclone to deal with. What I packed would have worked for either week’s weather, so it was a solid wardrobe plan.

Whether or not you choose to carry enough to cover last week’s weather as well as the forecast temperatures is a personal choice. I’m more comfortable being over- than underprepared, especially when setting a modest pace with no special events that demand tight connections or a particularly quick turnaround between destinations. Continue reading

New symptoms, however trivial, seem an insult with chronic illness

When you live with a chronic illness, you become accustomed to what might be a whole host of pains, inconveniences, and symptoms in general. No matter how difficult or debilitating, the ever so flexible human being adapts to the situation, and she carries on.

But, a new symptom? Each one strikes me as an insult. It might be the most trivial yet, with fewer obvious repercussions for my overall health in the long run, but I’m outraged.

Why?

Because I’ve gotten used to my symptoms, so this strange one must be… someone else’s? I don’t know. But it isn’t on my list.

Until it is. And then there is one more thing to add to the bundle that I’m carrying. Some days, I really, really wish I could just set that burden down.

This isn’t meant to as a complaint. I actually noticed this reaction in myself recently, and found it kind of funny. I thought I was overreacting to a tiny change.

Health eyes Systane drops - 1Dry eyes? Big deal! And they aren’t anything that can’t be dealt with using over the counter drops. Thus spake the ophthalmologist. It’s silly, really.

Amusing, anyway, until a trivial symptom gives way to a more troubling cousin, and then the immediate annoyance makes more sense.

Annoyance stands in for anxiety, or even fear, and there’s not much use in that when there’s no one to fight and nowhere to flee.

I’d rather be grumpy and in control of something, even if that something is my own foul mood.