Chronic illness stinks, but I still opt for gratitude

I woke up this morning and realized:

Yesterday was the first day in months during which I hadn’t needed any* pain medication!

Bottle of pain pillsToday, then, it is perhaps “too easy” for me to write about living with a sense of gratitude in spite of the burdens of chronic illness.

You might assume I’m just having a great day, or that I’m naturally perky.

It is fair to describe me as fundamentally optimistic, but perky? Not so much. I’m decidedly prone to uncontrollable outbursts of snark and cynical enough to doubt the motivations of others.

This “less pain” holiday certainly does, however, make it easier for me to reflect upon the gifts I’ve gained from living with chronic illness.

Most importantly, my pain and physical limitations have made me more empathetic. I’m a better person for the suffering. That’s something, anyway!

I am now more likely to give someone else the benefit of the doubt in frustrating situations. I have more patience for slow movers and “inconvenient” people in my way. I’m far more generous with my tolerance.

Pain is also teaching me to have patience with myself. This is true not just when I need physical accommodations like using the buttons to open powered doors or taking the handicapped stall lest I find myself perched and suddenly realize the knees won’t raise me back up without an assist from a sturdy grab bar.

Bathroom fitted with accommodations for physical disabilitiesGiving myself permission to make use of aids for physical disability also seems to rub off on those nasty tendencies toward negative self talk that can be so undermining to one’s psyche. If I’m worth accommodating when my body fails me, why, suddenly, I can forgive myself for a day’s lapse in will power or my other myriad and sundry imperfections.

I wouldn’t wish a life interrupted by chronic pain or ongoing illness on anyone. Then again, I wouldn’t change anything about my own history if a genie popped out of a lamp and gave me the option.

I’m grateful for the life I have, warts and all. It would be wonderful to find a cure for what ails me, but I’m thankful for the lessons from the illness in the meantime.

Wall art stating “Give thanks”Being sick is beyond my control. Choosing to live my life with gratitude is up to me.

*With the exception of the topical prescription NSAID that eases my most finicky—and much used!—joints in the fingers and wrists, I suppose I should add. A day completely without pain is, sadly, no longer something I ever seem to have.

I’ve had such frustrations with the side effects of opioids and the synthetic alternatives that I have a truly love-hate relationship with them. Taking these pills does make the pain a little more bearable on a bad day, but nothing actually stops it completely when it is bad. Oh yes, and then the drugs screw up my sleep which can create its own vicious circle because fatigue increases my pain!

There is lots of room for improvement in medication for the management of chronic pain.

Key Straps save my stuff: how Tom Bihn’s bags keep arthritic fumblefingers from ruining my day

In other posts, I’ve referred to the way Tom Bihn bags often make my life better. I want to expand upon that point lest I sound like a mere company shill.

Tom Bihn PCSB and Cafe Bag with Sunday Afternoons hat on hotel desk

Tom Bihn bags and Sunday Afternoons hat

Today I’ll talk about how one “key” feature of this particular brand helps me stay organized and deal with the ongoing issues of a chronic medical condition. I’m talking about removable Key Straps that can be attached to O-rings integral to Tom Bihn bags and many other anchors on luggage or in hotel rooms.Tom Bihn Clear 3D Organizer attached with Key Strap to handicapped rail in hotel bathroom

Key Straps are the “key” feature

I carry a Cafe Bag ($70, size: Medium, color: Original/black Halcyon with Wasabi lining) almost every day, sometimes swapping it out for a Travel Cubelet ($40) or my Packing Cube Shoulder Bag (PCSB, $34) when I travel light. My Cafe Bag is generally fitted out with six separate Key Straps at once, each serving a unique function.

Tom Bihn yellow Key Strap on Cafe BagKey Straps ($5) come in 8-inch and 16-inch lengths, and are currently offered in seven colors. Many of mine are the older style, sewn from folded Dyneema/Halcyon nylon fabric. Newer Key Straps are made of webbing instead. Key Straps come in two varieties: with a snap hook on both ends, or a snap hook on one end with an O-ring on the other.

Additional Tom Bihn accessories that go virtually everywhere with me include:

  • Clear Organizer Wallet ($17) for cash on Wasabi TB Key Strap
  • Coach purple leather card wallet on Steel/grey TB Key Strap
  • Solar/yellow TB Key Strap left empty for… my keys!
  • Pocket Pouch ($10) in Aubergine with Wasabi lining for lip balm attached with its own integrated clip
  • Eagle Creek pouch on Ultraviolet TB Key Strap
  • Aubergine Small Q-Kit ($18) on Iberian/red TB Key Strap for medication
  • Wasabi Mini Q-Kit ($15) on Wasabi TB Key Strap for electronic charging cables and earbuds
  • Clear pouch with red back for paper and longer objects I want to carry, often including a checkbook, a full length emery board (nail file), or a passport

I attach non-Bihn items by various methods. You can see the Key Strap snap hooks attached to a key ring on my card wallet and a fabric loop on my Eagle Creek purple pouch in my detail photos. The integrated O-rings and detachable Key Straps are tiny things that make a tremendous functional difference in my Tom Bihn satchel, but these accessories play very nicely with other brands.

By designing modular pockets, pouches, and parts for the end user to attach or not with separate Key Straps, every bag can be customized precisely for its specific purpose. This works really well for me.

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10 hour airport layover teaches me: to covet Eames Lounge chairs

The up side to using airline miles to join your spouse at an international conference is paying a mere $18.10 for a Business Class ticket to the UK. The down side? A layover stretching just over 10 hours.

Being a glass half full type, I’ll get back to the positive: tickets in international Business Class get you access to premium lounges. The dreadful reverse?

DFW Lounge Eames chair - 1Now I wish I had a very expensive Eames Lounge chair and Ottoman of my very own.

American Airlines (AA) Admiral Club lounges, at least those at DFW, are known for having a few of these classic, Mid-Century Modern pieces of furniture.

DFW Lounge Eames chair row - 1Love or hate the looks, these are some radically comfortable chairs.

I spent at least six hours in one Eames Lounge chair or another this July as I “enjoyed” the comforts of DFW airport and visited all four Admirals Club locations therein. It made for a pretty solid product test. Having viewed the iconic seats previously in museums and catalogues, it was fun to take one for a spin.

DFW Lounge Eames chair ottoman - 1No part of my body hates any other part when I sit in an Eames Lounge. Try not to judge that statement if you don’t live with chronic pain. That’s a damn fine chair.

Not familiar with the groundbreaking and multidisciplinary work of designing duo Charles and Ray Eames during the 20th Century? Get an overview on Wikipedia or go straight to the goods at their official site, Eames Office.

For my favorite thing they ever did, view their nine minute short film, Powers of Ten. It’s on YouTube. When I wanted to show it to my children, I found it on DVD at the local library.

10 hour airport layover teaches me: airport showers are awesome & often accessible

If you’ve never stepped foot in an airline lounge, you might not know that some of them have shower facilities. That isn’t very important for most of us who take the occasional domestic flight, but it can be a real game changer after a red eye or when laying over before an international long haul.

img_7364You don’t need a First Class ticket to use an airport shower facility, though you’re more likely to gain access for “free” if you spent a lot more for your ticket. At DFW, for example, the Minute Suites Terminal D location–a nap cubicle “hotel” past security in the airportalso sells shower passes with no private suite rental required.

Expect to pay around $30 to buy access to a fee-based airport shower facility, or around $50 per traveler if you’re purchasing access to an airline lounge like the American Airlines Admiral’s Club I used at DFW.

I probably wouldn’t have paid for a shower during my ten hour layover in July, but, having taken one in part to kill time after I’d visited every terminal and viewed all of the public art in DFW’s brochure, I would consider paying for a shower the next time I’m spending more than a few hours cooling my heels en route.

For me–an introvert with arthritis–I got about equal pleasure from two separate aspects of this experience. First, being totally alone in a room after hours of being in public. Second, the nice, warm shower itself, which always does some good at easing my joint pain.

DFW Terminal A Admiral’s Club shower

img_7366img_7367Can you ever feel really, REALLY unhappy when looking at a pile of fluffy white towels someone else has placed for your comfort and convenience? I can’t!

Everything you need comes with the key to the private shower room at the Admiral’s Club-DFW Terminal A location. Ask at the front desk to get access.

Shampoo, shower gel, Q-tips, and cotton balls are in place in the room, ready for your use. I used my own, of course, since sensitive skin is another fact of my life, but the products offered weren’t overly perfumed. This is a reasonably safe space/experience for those of us who get headaches from strong fragrances.

DFW Admiral Lounge AA shower - 1There were more towels than I needed, enough that I might ask, next time, for just what I would plan to use to save the water/energy of washing untouched linens. The space was quite scrupulously clean. There’s also a luggage rack to keep your suitcase above* the damp, and a hairdryer if you want it.

Since I was feeling quite well, I forgot to ask if there were accessible showers, but either they all are in this Admiral’s Lounge, or I just happened to get one that was. It had a fold down bench in the shower enclosure and an adjustable height hand shower wand in addition to the rain shower head. You won’t lose out on luxury if you just need grab bars sometimes, like me.

If you can’t stand at all, you might need to ask the staff to lower the hand shower to an appropriate height on your behalf. Mine was set way up at the top of its range when I walked in.

London Heathrow AA Arrivals Lounge shower

In addition to the Admiral’s Club shower at DFW, I took advantage of the same perks included with my First/Business ticket, purchased with Alaska Airlines frequent flier miles on AA, and visited the American Airlines Arrivals Lounge after retrieving my checked bag at London-Heathrow (LHR).

LHR Arrivals Lounge AA shower - 2LHR Arrivals Lounge AA shower - 3

LHR Arrivals Lounge AA shower toiletries - 1Though without a doubt the more hygienically important shower I enjoyed during the trip, the Heathrow shower room was smaller, less well appointed with little extras, and decidedly not accessible. (Again, I failed to ask specifically for a stall equipped for mobility impairments, so this is what you get without asking for special treatment.)

LHR Arrivals Lounge AA shower - 1There was no luggage rack in the compact LHR Arrivals Lounge shower room, leaving me to wedge my full size carry on next to the sink on the lavatory counter itself. I had checked a mid-size rolling suitcase, which you can see standing on the floor beneath the counter and blocking the exit door in my photo.

Perhaps there was luggage storage somewhere else for those who pack heavily, because there certainly wasn’t space in the shower room for large checked bags!

It was as clean as you would expect, however, and made the transition from night flight to the Tube less stressful than it might have been in spite of temps in the 90’s on London’s non-air-conditioned subway cars.

 

Dublin, Ireland 51st & Green Lounge shower

Upon my return from the United Kingdom to the USA, laying over at Dublin (DUB) airport, the 51st & Green Lounge, post security, was free for USA-bound Business and First Class customers, but accessible to anyone willing to pay the €39 entrance fee.

DUB departure Lounge 51st and Green shower - 1Shower use is included in the price, but there is just one accessible stall available, and it is combined with the only wheelchair accessible toilet in the space.

img_7478 This accessible bathroom/shower—also serving as the sole baby changing space— is in a different area than the main restrooms, also off the main entrance hallway but a bit further along from the front door. Thankfully, this made it a bit closer to the lounge’s seating areas. The primary restrooms felt like a real trek as my arthritis acted up during my wait.DUB departure Lounge 51st and Green showers - 1

Knowing that no other handicapped toilets were available if I opted to use the shower made someone with generally good mobility like me hesitate to even consider taking one, though I was having noticeable symptoms even before my nine hour flight home and the hot water might have felt good. There was another passenger in the lounge who appeared to be confined to a wheelchair when I was there, reinforcing my feeling that taking an unnecessary shower would be a bit selfish.

The standard shower room looked reasonably spacious for my purposes, but it didn’t have a safety hand rail. With a knee acting up that day, it didn’t seem worth taking a risk.

Fortunately, it was neither a blazing heat wave such as I suffered in London, nor a double digit hours layover like my time in Dallas, so foregoing a test of the 51st & Green shower facilities an hour after I’d left my Irish hotel was no real sacrifice, except to my ability to share the experience with readers here. There are few reviews of this particular shower, but most USA bound flights from Ireland leave in the morning, so perhaps the demand is simply low, and a single stall is adequate.

The 51st & Green Lounge was lovely, very new, and everything else was to a high standard, though, leading me to expect the showers would measure up.

*Though the shower drained properly and no water spilled out of the enclosure or anywhere near my luggage, I would advise travelers to always assume the worst with unknown plumbing and place all belongings somewhere high and dry, just in case.

I thought I was going to see a man laden with bags die in front of me on the London Underground. Ugh! 

Take advantage of services offered: treat yourself like a friend

Using myself as an object lesson once again, I’ll remind anyone with a less than perfectly functioning self to make use of the services that are offered to you. More than that, be proactive, and request what you need.

It’s amazing how many ways there are to make the trials of modern travel easier, but also amazing how loathe some of us can be to ask for help.

Today’s case in point: having a difficult joint act up while waiting in the Dublin Airport 51st & Green airside (past security) Lounge. This is a lovely, bright airport lounge. There are quite a few worse places to pass a few hours. Its design, meant to evoke the Neolithic tomb Newgrange, immediately made both myself and my husband think of 2001: A Space Odyssey when we (on separate occasions) entered.

Evocative–and attractive–as the long, white entry corridor is, it’s enough to strike fear into the heart (or knee, foot, hip) of an individual struggling to walk without pain. The toilets are 2/3 of the way down, back by the reception desk. Sigh.

I thought about going to ask for a wheelchair escort when the pain struck, then sat down, determined to ignore yet another annoying infirmity. Then I had this thought: if my husband were here, he would demand help for me, because he thinks I deserve it. And he’s right!

If I were watching a loved one struggle with pain, even mild pain, I would seek help, and I would insist s/he make use of it. Why should I do any less for myself?

Am I suggesting that I’m the center of the Universe, that everything revolves around me and my needs? Well, no. But I would argue that treating myself as less than I would a friend or casual acquaintance isn’t brave or valiant, it’s unloving and unwise.

Self advocacy doesn’t equate to self indulgence.