Managing chronic pain on the 12+ hour flight to New Zealand

Since developing chronic pain that accompanies an autoimmune condition, I’ve continued to indulge my love of travel, but learned to adapt my bookings and my belongings to minimize pain and maximize comfort.

 

Flights of six hours or so are regular occurrences for me and my family. I’ve had a couple of very painful trips of this duration, but, more typically, I can tolerate them by adjusting my medication slightly and employing a few aids such as wrist braces, inflatable cushions, and hot water bottles.

 

This winter, I faced the longest single flight I’ve ever taken: 12 hours and 40 minutes just for one leg from Los Angeles, CA to Auckland, New Zealand. The combination of traversing the United States from our New England home (6.5 hours), crossing the Pacific (12.7 hours), then connecting to our final destination of Christchurch, NZ on the South Island (1.4 hours) made for a total time in the air of 20.5 hours.

Of course, one must also add to that total the requisite airport waiting time required by international flight connections, customs, security, and the necessity of allowing adequate buffers in case of delays. At least two full days of my calendar were bound to be eaten up by this voyage in each direction.

After considering many options, I elected to travel in two distinct stages for both directions of travel. This meant parting ways with my husband entirely for the domestic portion of our trip. His schedule doesn’t allow for an unnecessary day spent in transit where tighter connections are possible.†

I was away from home for a total of fourteen days; DH, by taking his domestic and international flights serially on the way out—and heading home on a red eye straight off the international leg—traveled for twelve days.

Though this post isn’t really meant to be a trip report, it must be said: even two weeks is barely adequate for visiting the antipodes. If you can squeeze more days out of your schedule, use them for a trip of this magnitude.

New Zealand is awesome, and well worth every hard won vacation day.

My itinerary outbound:

BOS-PDX on Alaska Air 33, Saturday 16:20-20:10

Three night stay with family in the Pacific NW

PDX-LAX on Alaska Air 568, Tuesday 10:50-13:22

LAX-AKL on Air New Zealand 5, Tuesday 21:40-Thursday 07:20*

AKL-CHC on Air New Zealand 527, Thursday 09:00-10:20

My itinerary for the return:

CHC-AKL on Air New Zealand 574, Friday 20:00-21:20

AKL-LAX on Air New Zealand 2, Friday 22:50-13:35**

Overnight hotel stay at the Crown Plaza LAX

LAX-BOS on Virgin America flight 1360, Saturday 07:05-15:34

Itinerary adaptations to reduce pain

I’ll repeat what I feel was the single most important adaptation I made to my itinerary to accommodate my autoimmune condition and its symptoms: I took extra time.

Travel. Stop. Recover. Repeat.

Heading west, I took advantage of family who live near the Portland airport who don’t seem to mind my visits, spending three nights at their home. This sleepover gave me time to recover from the initial cross country flight and ease my body’s adjustment to a change of three time zones.

NZ Crowne Plaza LAX hotel room - 1Upon arrival in New Zealand, I had already acclimated from the Eastern to Pacific zone (USA West Coast) which represents half of the total time shock. Though the flight is lo-o-o-o-ong, most of the travel between California and New Zealand is in a southerly direction. You only drop three more time zones on that 12 hour flight.

Heading west is also usually less difficult in terms of jet lag.

Continue reading

Rushing for life experiences when chronic illness fuels your fears

I’ve had the great fortune to travel regularly throughout my life.

I enjoyed those pivotal vacation experiences of a happy middle class childhood: a couple of trips to Disneyland and bragging rights about having flown on airplanes and crossed a national border or two, if only to near neighbors Mexico and Canada.

I attended college in a different region from Home. I flew cross country at least four times a year because of this one fact. I built my desire to see the world into my educational plans, and it worked out well for me.

I didn’t even mind long distance romances in my youth, because what could offer better motivation for frequent trips? I love having a journey coming up in my calendar.

Later, working as a software engineer, I had the privilege of visiting subcontractor sites in Denmark and Spain on my employer’s dime. At the same time, I was a single, adequately employed young adult during the roaring 1990’s before the dot.com bubble burst.

For as long as I’ve had the option, I’ve traveled regularly, and I’ve enjoyed most of it. I dream of “seeing the world.” I’ll be grateful for every corner that I reach.

Yet, in spite of all this to-ing and fro-ing, there has been a certain rhythm to my rambling. At my youthful peak, I was not a high energy traveler. As a middle aged mother with a couple of kids in tow, my pace is typically sedate, and I prioritize comfort and convenience over the heights of adventure.

Looking back over our family travels, a pattern emerges. Every few years, we’ve had a “grand adventure.” How grand is Grand has changed with our finances and family status, but it’s always been a cycle of plan, anticipate, then go.

Maybe Go! with a capital and an exclamation mark expresses it better.

“But lately something’s changed, it ain’t hard to define…”* Or, rather, it isn’t hard to unearth the cause of the shift. I’m scrambling. I’m rushing. I’m tumbling from one trip to another without enough time to fully digest each experience.

Some of my trips bump up hard enough against the next that I feel more overwhelmed than anticipatory.

I know why I’m doing it, too. I’m afraid.

I’ve been saying yes to one trip after another because I’m afraid it will be my last chance to travel before I’m sidelined by infirmity and pain. Continue reading

Barcelona 2017: B&B Wine & Cooking in El Pla del Penedès, Spain review

Attempting to wrangle every thought I’ve entertained about a week long trip to Europe would result in my posting about it after weeks if not months passed. Instead, I’ll try to focus rather narrowly on little slices of the journey. Knowing my propensity to go on and on and on, this might also keep my posts to a digestible length for the digital age.

Foodie fantasy outside the city of Barcelona

Here’s a not-so-secret secret: I’ve avoided driving in any nation except my ownokay, I’m ignoring Canada. Forgive me, neighbor to the north! But your roads are so similar to my own, and I can bring my own trusted car. It doesn’t count.

On this, my most recent trip to Europe, I faced a conundrum. Hire a rental car, or give up a much anticipated trip?

Barcelona 2017 B and B Wine Cooking car Renault Espace - 1

Renault Espace, felt like the largest car in  Spain

I rented a car. I hated almost every minute of driving the lovely but oversized Renault Espace in even small cities like Vilafranca del Penedès and Sant Sadurní d’Anoia, but it did provide me with the means to reach a really sublime rural experience: a mother and son private cooking class with the owner at B&B Wine & Cooking in El Pla del Penedès, about 45 minutes outside of Barcelona.

Background: civil unrest in Catalunya & a nervous husband

Barcelona 2017 Vilafranca Catalan flag - 1

Monument in Vilafranca with Catalan flag flying proud, NOT the national flag of Spain

My husband, whom we might politely describe as “travel averse,” was trying to dissuade me from joining him in Barcelona with DS2 at all. DH was near to canceling his own appearance at a really interesting conference. Why? The Catalan independence movement, and media depictions of dissent and violence that were widespread in the months leading up to our trip.

Back in the spring, when I found a reasonable* coach airfare to join DH on this jaunt to Spain, I immediately invited my children to come along. Shocking no one, my little guy opted to miss a week of school and join us; to my chagrin, my punk teen decided he would rather stick to his usual academic routine at home and demurred.

Though I find myself pondering whether someone could have switched DS1 at birth** for my rightful child, I do sort of understand the teenager’s desire to assert his independence by doing something—anything!—different from what his parent suggests.

Beyond the city limits: choosing an experience

So there were three of us headed to Spain in the early winter of 2017. We would be staying in the heart of Barcelona for the four nights of the conference. After that, DH booked his ticket home at the earliest possible moment. To save over $1000 each, DS2 and I needed to stay over until Saturday.

Barcelona 2017 B and B Wine Cooking outside flowers

Spain flowers even in winter

Originally, I’d booked accommodations in the medieval center of Girona for the parent-child short break. Girona is about an hour north/northwest of Barcelona. Trains, while available, aren’t super convenient to that village, however. There is no city-traffic-avoiding route back to BCN Barcelona International Airport during morning rush hour without a private car. Parking in old Girona is also not known to be convenient.

While I was keen to visit this ancient town due to its beautifully preserved Jewish quarter and its being the setting for a great series of medieval mysteries, it turns out that the world has discovered Girona because Game of Thrones has filmed there. That’s a little too much pop popularity for me to visit El Call right now.

DH, fearing he would leave and then a transit strike—or worse, total civil unrest!—would leave his wife and child at the mercy of a rioting mass of Catalan separatists, wanted me to make a plan better suited to last minute changes and further removed from the politicized masses.

I booked a rental car from BCN for the morning of DH’s departure. This option provided us with freedom of movement in the face of taxi strikes or to flee more serious unrest in that unlikely event. I then found an intriguing bed and breakfast outside the city in which DS2 and I would spend our final two nights in Spain.

As an aside, I never felt unsafe in Barcelona or the surrounding region. Except possibly while negotiating the narrow, winding exit from the airport parking garage in an SUV the size of a semi, but you can’t blame that on politics.

Catalunya: experiencing hearth & home

One of the ideas I’d entertained for making the trip to Spain a pleasure for both myself and my younger son was a cooking class.

barcelona-2017-b-and-b-wine-cooking-class-mom-with-kid-e1517158098792.jpg

We (helped Marta while she) made that paella!

Yes, it’s true, any regular reader knows that I’m not typically an enthusiastic cook.

That said, I am an enthusiastic student of what makes other people—and other cultures—tick, and it is hard to place a finger on the pulse of Catalunya without discussing food. These are people who love to eat, who know how food really ought to be, and who seem to enjoy sharing all of the same.

I’d entertained the notion of this class in Barcelona, but the timing wasn’t working out quite right. Plus, if I’m honest, I would rather visit a nice, dusty history museum any day, whereas my son was hoping to stay in the hotel watching his favorite cartoons in various languages.

What did pop up when I started researching lodgings outside the city of Barcelona, but within a radius of about one hour, were farm- and winery- based experiences.

Penedès, if I’m getting this right, is the heart of the grape growing region that produces some the world’s best sparkling wines, or cava, as it’s known locally. At least one person with whom I spoke implied that champagne is basically just a French knock off of Catalan cava!

I won’t take a position in the subjective argument of “best” or the historical question of “first,” but I can tell you that it is easy for a non- aficionado to learn about and experience great sparkling wines in Penedès, even with a child in tow.

Barcelona 2017 B and B Wine Cooking street sign

Signpost guides the way. Take the narrow dirt track to the right around the cluster of houses.

So I booked the B&B Wine & Cooking in El Pla del Penedès and hoped for the best. It had good reviews on Trip Advisor, but was mostly an unknown. I chose to use Hotels.com for booking, just in case any of it was less than legit, but, in the end, have nothing but good experiences to report from Penedès.

BandB WineandCooking Cava welcome - 1If I return, next time I will book directly with the B&B. When you do, they guarantee you the lowest room rate and give you a free bottle of cava as a welcome gift.

B&B Wine & Cooking, El Pla del Penedès

This bed and breakfast is family friendly. I’ll start there, because so many B&Bs in the USA are fussy establishments that seek to insulate their guests from such inconveniences as children and telecommunications. This is not that. Continue reading

Barcelona 2017: From Boston to Spain on SWISS… with a Business Class upgrade win

Attempting to wrangle every thought I’ve entertained about a week long trip to Europe would result in my posting about it after weeks if not months passed. Instead, I’ll try to focus rather narrowly on little slices of the journey. Knowing my propensity to go on and on and on, this might also keep my posts to a digestible length for the digital age.

Travel day 1: Transatlantic red eye

Anyone who’s flown within a decade or so is aware that conditions in Economy Class are cramped and uncomfortable, even for short, daytime flights. Getting to Europe from the USA means losing hours as you jump ahead six to nine time zones, and most flights depart at bedtime with a morning arrival.

Full disclosure: I had never successfully employed the “correct” procedure of sleeping on the plane, toughing it out upon arrival, and staying awake all of the first day in Europe. Before this trip, I had always tumbled into a desperate sleep upon reaching my hotel.

Even as a teen—my first visit to London was led by my high school theatre teacher between 11th and 12th grade—I found jet lag really difficult, and staying awake after a night flight really, really hard.

Barcelona Ramblas hotel bed - 1

Heaven is a big, soft bed after an overnight flight in Economy

I’ve never been particularly good at sleeping in a seat. Now that I have a chronic condition that includes regularly experiencing fairly significant pain, I was downright worried about the seven hour flight to Zurich (ZRH), where we would change planes for our ultimate destination: Barcelona (BCN), Spain.

First, I was afraid my hip arthritis would go into overdrive from all the sitting,* like it did on two domestic cross country flights this summer. Second, I feared I would sleep poorly, if at all, and thus experience increased pain triggered by fatigue. A double whammy, and one that tripled my anxiety in the weeks leading up to the journey.

You can’t fly direct from Boston to Barcelona. I had the freedom to select** our flights, and I opted for a transfer in Zurich with SWISS International Airlines.

I’d read excellent reports about conditions in Zurich airport on FlyerTalk. I always go looking for the opinions of frequent flyers in the FlyerTalk forums when I book airline tickets that include an unfamiliar layover location.

Transfers can be beastly in the world’s largest, busiest airports. I will pay extra to have a quicker, cleaner, or smoother trip through customs and passport control.

My husband did not appreciate the fact that we flew outbound on SWISS with a return on parent airline Lufthansa. They are code share partners, but not the same airline. This made reserving seats more complicated. He had a little angst about having to view his flights on two different websites/airline apps.

After all was said and done, however, DH was pretty happy with the flights I selected. He has even declared Munich (MUC) his favorite world airport. He’d rather stay home, but, if he must have a layover, he’d like to have it in München. He loves the relaxation area with its chaise longues.

Booking airline tickets

Every time my husband has an international business trip, I check airfares to see if I can tag along. Usually, it is prohibitively expensive for an extra ticket, and the second one must be paid for on our own dime.

Sometimes, he’s booking too close to the dates of travel for the best price. DH also tends to make the shortest possible trip (no Saturday night stays, typically flying on peak weekdays) and is unwilling to adjust his schedule or take a less convenient flight to lower the fare into “bring the family” territory.

That’s his right: he’s a busy man, and he doesn’t enjoy travel. He’s going to go where the conference or university is, give his brilliant talk, eat room service, and get back ASAP to our family home and the people that he loves. I wouldn’t want him to change!

Admittedly, though, I’m sometimes a bit jealous when he makes several international trips in a year, complains about them, and doesn’t even get out of his hotel room to tell me what the city of Such&such was like. Or try the famous insert food here. Or see the renowned site right across the street from his hotel. Sigh.

This time, however, all the stars aligned. DH was invited to a great conference in Barcelona, a world class destination by any standard.

The dates fell just after Thanksgiving, so I knew I’d have family in town to watch my kids if I wanted to join him on an adults only trip.

It was a four day conference, a little longer than some, making the transatlantic flight worthwhile even for a jet lag lightweight like myself.

I booked his ticket, then checked prices for my own itinerary if I went with him. For myself, I looked at a return flight on the weekend instead of his preference, Thursday. It wasn’t pricing out in the thousands; the economy fare was under $500. I booked it immediately.

And then I started thinking… At this price, we can afford a family trip to Europe!

I’d paid for the kids’ passports to take them to Iceland years before, but we’ve hardly used them since. Apologies to Canada, but our passport cards are sufficient to visit you by land or sea.

Checking in with my teen, he shocked me by stating his preference to skip Spain. I nudged him a little, but, in the end, decided to respect his wish to stay at home. He’s kind of like his dad—a homebody—and he’s very much entered into the teen period of finding his own way by rejecting, sometimes reflexively, his parents’ priorities.

If he were studying Spanish, I might’ve insisted, but DS1 would remain with his grandparents post-Thanksgiving.

My little guy was a different story. When we travel, he is my most frequent social companion in the evening. On cruises, he’ll accompany me to formal dinners so his dad can enjoy room service in sweatpants. DS2 has danced in shipboard discos, and sipped virgin mocktails in swanky piano bars. He keeps a full wardrobe of bow ties for such occasions.

Son with mocktail in shipboard bar - 1

DS2 aboard our favorite ship, Crystal Serenity, at (rainy) sunset in Alaska.

When I described Spain’s culture of frequent socializing in bars and restaurants, with families dining together into what we consider the wee hours, he was all in. He didn’t object to missing a week of school, either, especially not in the land that introduced chocolate to Europe.

I had to call to book his ticket separately because DS2 is a minor. The website wouldn’t allow me to make the reservation as it looked like a case of a child traveling alone. We traveled with three different ticket locator numbers and e-tickets. This worked out to my advantage as our departure date neared.

SWISS Upgrade Bargain bid for Business Class

SWISS offers a program called “SWISS Upgrade Bargain” in which, if invited by the airline, one can place a bid in an amount of one’s choice within an airline-delimited range to be upgraded from Economy to Business Class. In my case, the price range allowed began at roughly CHF 780 up to an amount more than business class would’ve cost if purchased outright for my ticket. I always check the fare for a better seat, even when I doubt I can afford it!

This no doubt fills the Business Class cabin while providing some revenue for the airline as opposed to their offering those seats to frequent fliers as a courtesy.

In an interesting twist, of the three of us, only I received an email from SWISS offering me the option to bid for an upgrade. The program rules state that children under 18 aren’t eligible, so my son’s case makes sense, but I am less clear on why DH, with his more expensive ticket, didn’t get the offer. There’s some possibility, he admits, that an airline email went into his spam folder.

At any rate, we had to keep one parent in Economy with our minor child. I suggested we make a relatively low bid and see what happened. If we didn’t get it, we would fly in uncomfortable solidarity in Coach. If we won the bid, I would offer the seat to my husband if I boarded the plane feeling well, but take it myself if I already had pain before we left home.

I didn’t quite forget that I’d placed the bid—I think I offered CHF 810, or about 30 francs more than the minimum possible offer—but I considered it an extreme long shot. Theories online as to how the odds of acceptance are calculated include the notion that one’s initial fare added to the bid might be the determining factor, and my ticket was cheap.

Two or three days before our trip, I got the email: my bid was accepted. I couldn’t reserve a specific seat of my choice under this scheme, but had no qualms about taking whatever SWISS offered. I believed that any lie-flat, Business Class seat was going to be superior to my carefully researched thank you SeatGuru Economy Class window seat.

This should come as no surprise: it was wildly superior. Continue reading

Letting reality be good enough: enjoying travel in spite of chronic pain

Sometimes, reality intervenes between our ideal experience and one we can achieve.

Since being diagnosed with an autoimmune condition, I’ve found myself having to adjust my expectations for many facets of life. That includes my hobbies, which can be hard enough to prioritize for a stay at home mother of two.

One of my favorite things is travel. I’m not a full on globetrotter like some, but my trips—planning them as well as taking them—are great highlights of my life.

In the past year, I’ve had to cancel much-loved annual jaunts due to flaring symptoms. I’ve had to “waste” money already spent on non-refundable tickets, and I’ve regretted going on excursions for which I was in no condition to participate.

I’ve found myself asking:

Should I even try to travel for pleasure anymore now that I’ve been diagnosed with autoimmune disease?”

My answer to that question—when the flare passes, and when the pain and exhaustion have subsided—is that I should. In fact, I must carry on.

If I don’t persevere, the disease wins. If I give up what I love, I’m choosing misery over joy. I never want to live that way.

I got dealt a bad hand this time around, but it’s the only one I’ve got to play. I can make the best of it, or I can quit the game. I could just watch the other players, but what fun would that be? That’s not the life for me. Nor would I wish such circumstances on anyone else.

With that said, here are a few tips for putting some of the pleasure back in travel for a traveler with a chronic condition. Continue reading