Real world Valentines, or, “There’s something weird on the toilet”

My husband always remembers to buy me flowers.

I lead with this fact because I’m well aware that not all spouses are as:

  1. generous with their displays of affection, and
  2. organized with their time

as my not-quite-perfect-yet-perfect-for-me husband. In a world where partner-bashing could be a professional sport, I like to clear a space to express my inter-personal gratitude and all the ways that our relationship makes my life better.

Here’s hoping I’m half as well appreciated by him! I’m also quite definitely imperfect, after all.

But this isn’t going to be a post about my “perfect” husband’s grand romantic gestures for Valentine’s Day. Instead, I’m moved to write about the imperfect intersection of family life, daily reality, and romance. Odd bedfellows, indeed!

I’ve told my husband about a million times that he doesn’t have to battle the crowds of beleaguered husbands to buy day-of flowers for me on Valentine’s Day, Mother’s Day, or any other Day When Good Men Buy Gifts. I do emphatically! enjoy being acknowledged, but I’m quite happy to let dates slip by a day or two in order to avoid crowds and gross inconvenience for my partner or myself.

I’d rather eat in on a holiday to avoid dining elbow-to-elbow in a packed room at the “correct” time for celebration. Along the same lines, I’m happy to receive my flowers on another day.

And yet, DH—being a gentleman with old-fashioned manners—showed up last Friday with a large bouquet of red roses for me. Yes: his mother is suitably proud.

I was having a rough day as far as my ongoing health issues go, so I decided to forego a heavy crystal vase in favor of anything I could lift.

Dozen red roses in yellow ceramic pitcher on windowsillMy favorite vessel for cut flowers is actually a little dijon yellow ceramic pitcher. I thought the red roses looked quite fetching in it, and the arrangement matched my outfit, too.

DH’s largess, however, meant I still had quite an array of blooms left for which homes wanted finding. It crossed my mind that a bud vase next to my desk would be a nice reminder of how much I’m loved while I work on the bane of every first quarter of the new year, our income tax returns.

3 red roses in a short, tulip-shaped bus vase of purple glass

A slim glass vase held only a few more stems, though, so I wasn’t done re-homing flora.

In keeping with the lower-center-of-gravity-means-less-knocking-over-by-arthritic-hands philosophy of the day, I remembered my tiniest crystal vase. It’s good and heavy for its size, but also quite stable. I was having that kind of day. Arthritis makes me a klutz.

Half a dozen red roses in a small crystal vase

I placed the final half dozen or so roses and went about my business.

Valentine’s Day fell on a school day this year, and, eventually, my younger son arrived home. Upon entering the powder room after dropping his lunch box in the kitchen, he yelled,

Hey, there’s something weird on the toilet!”

Yes, dear readers, I’d placed the final little vase in one of the few uncluttered spaces in my maximalist home: atop the toilet tank lid in the guest bath.

I suppose “something weird on the toilet” is better than “something rotten in the state of Denmark,” at least as far as home decoration goes.

Small crystal vase of red roses atop white ceramic toilet tank

Here’s what Instagram stories rarely feature: we all live imperfect lives. Many families have messy homes. We certainly do. Yes, even on holidays.

Maybe especially on holidays!

Loving partnerships thrive in cluttered suburban McMansions, Korean banjiha, dilapidated farmhouses, and also I’d expect in zen-like modern interiors kept up by teams of professional cleaners as seen on tv.

Here’s the long view of my other vessels full of horticultural affection.

The kitchen sink is full of dirty dishes, but our hearts are full of love!

I fussed for about five seconds trying to take a “pretty” picture of my Valentine flowers, but if I’d had the energy to get the dishes done and work on the taxes, it already would have happened.

It’s easy for me to get caught up in foolish self-inflicted punishments.

  • I can’t buy that bouquet today because they will look dumb on my cluttered dining table.
  • There’s no point replacing my tattered towels when the kids keep staining the good ones.

Lipstick on a pig!

You can follow that path to all sorts of dreadful places, like not buying flattering clothing that fits for want of losing weight. It’s silly, it’s harmful, and I try not to live like that.

My Valentine flowers are a loving gesture from a person who actually strives to make me happy every single day. That’s well worth celebrating in and of itself! Seen in that light, it would be downright shameful of me not to share my imperfect photos with the world with the celebration and joy that selfless love deserves.

On Valentine’s Day, I didn’t feel in wonderful health and my house was a mess, but I had the good fortune to spend the day with people I love and who love me back. It’s lovely; it’s enough. I wish everyone felt free to bask in such glorious imperfection.

And a skeptic as to my sincerity when I protest obligatory flowers, even 20+ years into our relationship!

Chronic illness stinks, but I still opt for gratitude

I woke up this morning and realized:

Yesterday was the first day in months during which I hadn’t needed any* pain medication!

Bottle of pain pillsToday, then, it is perhaps “too easy” for me to write about living with a sense of gratitude in spite of the burdens of chronic illness.

You might assume I’m just having a great day, or that I’m naturally perky.

It is fair to describe me as fundamentally optimistic, but perky? Not so much. I’m decidedly prone to uncontrollable outbursts of snark and cynical enough to doubt the motivations of others.

This “less pain” holiday certainly does, however, make it easier for me to reflect upon the gifts I’ve gained from living with chronic illness.

Most importantly, my pain and physical limitations have made me more empathetic. I’m a better person for the suffering. That’s something, anyway!

I am now more likely to give someone else the benefit of the doubt in frustrating situations. I have more patience for slow movers and “inconvenient” people in my way. I’m far more generous with my tolerance.

Pain is also teaching me to have patience with myself. This is true not just when I need physical accommodations like using the buttons to open powered doors or taking the handicapped stall lest I find myself perched and suddenly realize the knees won’t raise me back up without an assist from a sturdy grab bar.

Bathroom fitted with accommodations for physical disabilitiesGiving myself permission to make use of aids for physical disability also seems to rub off on those nasty tendencies toward negative self talk that can be so undermining to one’s psyche. If I’m worth accommodating when my body fails me, why, suddenly, I can forgive myself for a day’s lapse in will power or my other myriad and sundry imperfections.

I wouldn’t wish a life interrupted by chronic pain or ongoing illness on anyone. Then again, I wouldn’t change anything about my own history if a genie popped out of a lamp and gave me the option.

I’m grateful for the life I have, warts and all. It would be wonderful to find a cure for what ails me, but I’m thankful for the lessons from the illness in the meantime.

Wall art stating “Give thanks”Being sick is beyond my control. Choosing to live my life with gratitude is up to me.

*With the exception of the topical prescription NSAID that eases my most finicky—and much used!—joints in the fingers and wrists, I suppose I should add. A day completely without pain is, sadly, no longer something I ever seem to have.

I’ve had such frustrations with the side effects of opioids and the synthetic alternatives that I have a truly love-hate relationship with them. Taking these pills does make the pain a little more bearable on a bad day, but nothing actually stops it completely when it is bad. Oh yes, and then the drugs screw up my sleep which can create its own vicious circle because fatigue increases my pain!

There is lots of room for improvement in medication for the management of chronic pain.

Profound joy alongside grief when accepting unavoidable loss

My sincere hope is that I bring more positive thoughts to the world than negative ones. My choice of domain name, ReallyWonderfulThings.me, reflects that impulse and intent.

Lately, however, I’m mired in a slowly unfolding crisis that looms inexorable. Here is one of those snafus inherent to life. I can’t avoid it. I can’t fix it. The best I can do for myself is to endure with a measure of grace.

For my ill loved one whose prognosis is likely death within two years, I’m also aiming to provide comfort and support to any extent that I can. I am wholly inadequate to the task.

I’ve shed plenty of tears and pitied myself because I’m human and so damnably, unrelentingly flawed. I’m already grieving a loss that hasn’t happened yet, even as I nurse the tiny flame of hope that we will defy the statistics, beating the odds and the fallibility of every living body.

Facing my fears one at a time and bringing my intellect to bear on the process is a large part of how I cope. I read studies, research long shots, and struggle with my fundamental powerlessness.

And yet! I have also experienced a shocking and rather profound blossoming of a calm state of resigned joy. I never, ever expected that.

Don’t mistake me; it’s bittersweet. I could talk about my sadness or my fear, and typing these words has already brought a fresh wash of tears. None of that surprised me, though. The joy sure as hell did.

Somehow, staring straight in the face of one of my worst fears brings with it a resolute peace as I’m forced to live in each moment, because, really, that is all that I actually have. It’s easier to savor sharing good times with someone when you know each event is precious, limited, and won’t ever come around again.

There is nothing I can do except live my life as best I can. What a relief to give myself permission to do so in the absence of guilt. How freeing to accept* what I cannot change. I never thought I had it in me.

May good fortune and robust health find you and everyone you care about.

*As the serenity prayer sagely advises. One needn’t be a true believer to accept good advice. I’m pretty sure a number of gurus are preaching along the very same lines.

Happy Hanukkah 5779 ~ Nights 1 & 2

Looking ahead and making note of the fact that Hanukkah falls early this year, on December 3, 2018–i.e., the evening of the December 2nd when converting from our Jewish to the secular calendar–didn’t prevent it from sneaking right up on my busy family and resulting in a Night 1 scramble.

We nearly missed observing Night 1 altogether. There was a late remembrance of the date. Thankfully, we had birthday candles in a cupboard and made a very quick observance of first evening of Hanukkah. We did better with Night 2, even with it falling on a school night.

Like most modern Americans, we positively swim in stuff. This year, my plan for eight nights of Hanukkah festivity is to alternate a shared gift one evening with a night of family activity the next.

Relaxed play time together is more precious than even Lego sets!

Don’t worry, though. The material gifts planned for Hanukkah 5779 are all Lego related, so new bricks will abound. We’re adding on to Bricklyn, our family display/play space located smack dab in our living room.

Yeah, my “design scheme” for our home is decidedly eccentric eclectic.

Lego Ninjago City set 70620 Hanukkah box buildLego Ninjago City set 70620 Hanukkah book manualGift number 1 and 2 was the hefty Lego Ninjago City (set 70620). As of Day 2, which follows Night 2, remember!, the 4867 piece set is not even halfway built, but that’s okay. Why rush a pleasure?

Happy Hanukkah, dear readers! May your family bask in a warm, bright glow this holiday season.

Note: Originally posted photos were all from previous years’ celebrations. I haven’t gotten a single current picture off of my phone yet, and none of them are particularly pretty. I’ve been too busy playing with the new Legos like a sensible person. Added Lego toy photos in update.

Have Segway; will travel… into the Alps

My first Segway tour of San Francisco’s Golden Gate Park was a lot of fun and well worth the fairly high hourly cost. My second Segway tour, along an Alpine trail from the Austrian resort town Seefeld in Tirol, was positively magnificent.

At €78 per person for a two hour tour, the cost of entry was lower. With the option to follow a scenic trail to a kitschy-charming Alpine inn otherwise closed to me due to pain and fatigue, the experience turned out to be invaluable.

Training to use Segway

Segway training before a tour takes between five and 20 minutes

My teen said this excursion was the most fun thing he did during our two weeks in Europe. And, by the way, I let him select most of our activities after I chose the cities we would visit.

Maybe I shouldn’t tell the friendly owner-operator Maximilian this, but I would have paid a lot more for such a wonderful experience. If you find yourself in Seefeld, definitely give him a call and take one of his Segway scooters for a spin!

I discovered Segway Tirol on TripAdvisor, but here’s the website and contact email: info@segway-tirol.info *

I’m extolling the virtues of the Segway today because I live with chronic pain as part and parcel of an autoimmune condition. Aside from arthritis, I also broke a bone in the sole of one foot many years ago… and now it feels like I’m always walking with a pebble in my shoe. I.e., annoying

Before my foot injury, my major occupation when visiting new places was to wander. I could happily lose myself for hours along the twisting byways of an historic city. I don’t enjoy driving, and I hate doing it in an unfamiliar, crowded place.

Public transit is hit and miss for me. I’ll use it, but unfamiliar fare systems provoke anxiety. Did I stamp my ticket correctly? Do I have exact change? With buses, I fear taking the wrong line; on subways, I compulsively check the map at each stop to confirm I’ve headed in the correct direction.

I also fear not getting a seat and falling down on lurching trains and buses. At times—sometimes unexpectedly—my weak hand and wrist joints won’t cooperate with my clinging to a post. Then again, I don’t appear deserving of special treatment or priority seating. Autoimmune conditions are often invisible to the casual glances of strangers.

I prefer the freedom and pace of walking… but I can’t go very far by foot any more.

Riding a Segway scooter does require one to stand. It wouldn’t be suitable for anyone with major foot or knee, or ankle problems. My pain seems to be exacerbated by the striking motion of stepping, however, so standing on the Segway is pretty much all right, most of the time.

I do have days where even my knees are affected by my arthritis, but most of my issues, most often, involve the small joints in my hands and feet. I wouldn’t try to ride a Segway if I were having a major flare, but the fatigue would probably stop me before joint stiffness anyway.

Stepping aboard a Segway scooter is like stepping back to a healthier, more able time and condition for me. It feels like freedom.

Mobility is a key component of personal empowerment. That’s true for the ability to afford a car in many American suburbs, and even more so for the giant leap from total dependence upon others or being housebound to the liberty of self-conducted, autonomous activity for those who can’t walk in the average way.

You get a taste of the utility of curb cuts, ramps, and automatic doors as a parent pushing a baby stroller, but it is hard to appreciate all the little motions a healthy body allows until some aspect of “what’s typical” is removed from your arsenal.

I didn’t stop grinning for a single moment I was aboard Segway Tirol’s scooter. The scenery was beautiful. The guide was kind and accommodating. Mostly, though, I was exhilarated to be conducting myself along an Alpine path without pain or fear of going too far and then succumbing to fatigue in an inconvenient place.

Some people think Segways are goofy looking toys for nerds; others consider them a sidewalk nuisance that should be banned. I’d guess most of those people are fully physically able and have no idea how poor the options are for those who aren’t.

For myself, I will be spending more time on two low, gyroscopically balanced, electrically powered Segway wheels in the future. I will seek out tours and rentals of these stable, easily controlled mobility devices. I may look goofy, but I will be grinning like a fiend.

It’s hard not to be happy when you’ve been set free.

Around $150 pp for 90 minutes, if memory serves.

*I booked our tour just the day before we took it. Maximilian was quick to respond and very flexible. Our “group” was just the two of us. There was no upcharge for the creation of a tour at our convenience!