Honestly admit vaccine side effect costs & better support the “hesitant” to increase compliance

When you get your COVID-19 vaccination—and I’d argue that approximately 99% of those reading this post have a moral imperative to do so—a realistic assessment of the facts suggests that you are likely* experience some uncomfortable side effects though they may be very mild.

News coverage, even in sources specifically geared toward those of us living with chronic conditions, heavily emphasizes the societal good which vaccination will bring—which is real enough—but most writers lean too heavily toward cheerleading at the expense of offering valuable information people need to cope with the particular pressures of their own individual lives.

I would like to stress that those of us more vulnerable than average to infirmity should plan for several days of being less effective in our work and daily lives after vaccination. It’s better to be prepared than to be caught flat-footed after the fact.

Politicians and business leaders who want the economy to boom should be offering solutions to make such preparations possible for the millions of Americans living in and at the edge of poverty who can’t afford to construct such safeguards for themselves.

Roughly 30 million American adults want to take the COVID-19 vaccine but haven’t yet managed to actually get the shot(s). Closer to 28 million are instead “vaccine hesitant,” stating they would probably or definitely not get vaccinated.Redacted official CDC COVID-19 Vaccination Record Card

Sufferers of autoimmune disease, getting your jab may well bring on a flare. That was my experience after my first dose, and I’m glad I dug down far enough through coy, dissembling news coverage and popular health reporting to be forewarned about the risk.

Here’s one published case study in The Lancet regarding the health of one gentleman with rheumatoid arthritis after getting the BioNTech-Pfizer vaccine. This article on Creaky Joints is the most honest that I read, speaking directly to specific reactions people with autoimmune conditions might expect.

I would take that first dose again, however, and I did return for my second shot of the Moderna vaccine.

I began composing this post whilst “enjoying” the resultant joint pains, exhaustion, and headache that came with full vaccination. Dose two also induced half a day of resounding nausea that could have been an exaggerated version of the queasiness I routinely get when very tired.

Side effects from the second shot prevented me from my normal activities—already constrained by my autoimmune disease diagnosis—for about two and a half days.

I.e., I would not have felt safe driving for at least two days after my second shot, nor would I have been healthy enough to go to work.

By comparison, after my first jab, I experienced sudden onset of extreme fatigue, headache, and an odd sensation I only associate with coming down with a virus that I can best describe as “the spaces in my joints feeling stretched out and wobbly.”Analog wall clock showing 12:06

Those shot #1 symptoms popped up about six hours after I received it mid-morning. I went to bed early, and the next day, all the viral infection type side effects were far less troublesome. I felt less than 100% the day after, but able to partake in most normal activities.

I.e., I could have worked through the side effects triggered by my first dose.

My arm ached significantly for a total of five or six days, however, and I developed an uncomfortable swollen feeling in my armpit several days later that was probably my lymph nodes reacting.

On the other hand, in the four weeks after my first dose of Moderna’s vaccine, I experienced the most significant stiffness, joint pain, swelling, and fatigue that I’d had since the pandemic began. Staying at home most of the time while society remained mostly shut down was generally very protective for me against my usual, recurrent autoimmune disease symptoms.

I used far less pain medication than usual between March of 2020 and April 2021. I went entire weeks without needing an NSAID anti-inflammatory or using prescription pain killers. Between my two doses of COVID-19 vaccine, I required at least one of those every day.

I.e., I would have struggled to meet the demands of a full time job plus family responsibilities on many of the days between my first and second vaccine injections.Prescription bottle of pain pills

It is worth noting that this potentially vaccine-provoked flare never reached peaks equivalent to the worst ones I had right after my diagnosis. Also, the flare absolutely could have been coincidental. But, again, it’s the only serious one I had through the entire pandemic right up until I got my first shot.

I’m not arguing against vaccination. I am suggesting some of us might need extra resources to meet our daily responsibilities when we elect vaccination, doing our part to protect the entire community. Stepping up comes with a cost.

I have a healthy, supportive spouse. My large family includes relatively helpful, fit teens able to pick up the slack with household chores. Family members have been able to stagger vaccine appointments so we never experienced side effects simultaneously. Our income is sufficient that purchasing takeout meals or prepared foods is not a burden. I am easily able to reach my regular doctor with any concerns because I’m well-served with health insurance and the means to pay for Direct Primary Care out of pocket—including an option to text message my GP directly for urgent issues outside business hours.

In short, I have the good fortune to control most aspects of my daily life, so I could plan around the reality of vaccine side effects. I had sufficient personal resources to fall back on to meet all of my post-vaccination needs. Far too many Americans are less fortunate, many in more than one of the areas I’ve mentioned.

Speaking specifically to the autoimmune-challenged community, I’ve been delighted to find that my second dose of the mRNA vaccine seems to have abruptly ended the prolonged flare I experienced in the four weeks between shots. After feeling much worse due to its side effects than I had in over a year, by the fourth day post-vaccination, I became more energetic—and had less joint pain and stiffness—than I could recall feeling in recent memory. bandage on upper arm

I.e., my RA flare ended abruptly along with my vaccine side effects from the second shot.

Given that vaccination clears lingering symptoms for as many as 41% of COVID long haulers, I was fascinated to observe what could be a related effect in myself after jab #2. Communicating this potential improvement in daily functioning to those who are vaccine hesitant while believing themselves to have had COVID—some of whom never got confirmation of a likely coronavirus infection due to the scarcity of tests early in the pandemic—seems like yet another missed opportunity in public health messaging.

Everyone who wants the economy to rebound fully should take all possible actions to enable workers, especially those at the margins of poverty with limited access to health care, to make, keep, and recover after appointments for inoculation. Full disclosure of the known risks and known benefits—but also realistic potential risks and probable benefits—could bring us closer to herd immunity and full fiscal and medical recovery.

COVID-19 still holds many mysteries for science to uncover. The need to offer accurate information as well as paid time off to over-burdened breadwinners and caregivers so that they can confidently book vaccinations—without risking their livelihood!—isn’t one of them.

America’s front-line, essential workers have already borne more than their fair share of the fight against this pandemic. Today, those who employ these millions should step up with specific support to enable each one to get his or her shots.

* I say “likely” based upon the CDC website stating, for the Pfizer vaccine, “84.7% reported at least one local injection site reaction” and “77.4% reported at least one systemic reaction.” For the Moderna version, they state “[s]ystemic reactions were reported by the majority of vaccine recipients” with over 80% experiencing injection site reactions.

RIP memorial demitasse, or the perils of living with autoimmune arthritis

Assessments used to measure the progression of autoimmune disease—like the one I live with—often include questions about how symptoms interfere with daily life. When arthritis afflicts the small joints of the hands, sufferers like myself experience the perils of managing common fragile objects.Starbucks wish you were here ornament demitasse - 3

Case in point: the demise of a demitasse cup I used every day.

This cup was a gift from my mother who passed away in 2019. Today, I fumbled it while loading the dishwasher. It cracked when it hit the counter, one corner crumbling to bits, then continued on to finish shattering against the tile floor.

R.I.P. Starbucks “You Are Here: Oregon” demitasse cup!

Starbucks wish you were here ornament demitasse - 1

My favorite vessel for my daily shot of espresso joy is hardly the first victim of my less-than-nimble MCP and PIP joints.

There’s a particular glass pitcher I use to refill my beloved Zojirushi countertop hot water boiler.

Because my hand slipped perfectly between the pitcher’s handle and body when my joints weren’t swollen, it was my yardstick for physical manifestations of arthritic flares. Swollen, the knuckles—where the base of my fingers meet my hand, or, less often, even the middle joints of my fingers—were too thick to slide into that same space. It made me feel less crazy to have confirmation that my symptoms were real,* physical, and not “all in my head.”

One clumsy morning, I bashed the handle off the pitcher as I maneuvered it between faucet and kettle. Somehow, I managed to rap the fragile handle against the edge of the counter as I lifted it out of the sink.

The result is a far less useful, slightly sharp nub on an otherwise pretty jug:Patterned clear glass water pitcher with top stub only of broken off handle

It was such a lovely pitcher, I still use it—though with even more care—for the same task. The vessel just can’t serve its secondary medical alert function anymore. Also, it is rather trickier to keep a hold of, so I tend not to fill it full to keep the weight manageable.

In the grand scheme of things, these are trivial losses. My hope in sharing this story of small failures is to illuminate—for those fortunate enough to enjoy fully able bodies—another of the small daily battles waged by someone living with even minor infirmities.

They take a toll. They have a cost.

Living in a world designed and built to be adequate to your needs—which is the happy reality healthy people inhabit—is extraordinarily convenient, yet easy to overlook until some change in one’s own status lays bare every discrepancy.

* For many patients with conditions that can’t be definitively diagnosed by simple tests like blood work—especially when the complainant is a woman or a person of color—it is common to feel, if not to be, dismissed as a mental patient instead of acknowledged as the unlucky sufferer of a valid physical ailment. A recent BBC story describes how even physicians with disabilities are greeted with suspicion by the medical establishment.

BraceletStreet offers accessible necklace manageable by arthritic hands

I like to wear a little jewelry even when I’m “only” visible to my household. The pandemic hasn’t affected my daily wardrobe at all!

Rings, watches, and most bracelets feel to me as if they interfere with my daily activities, but earrings and necklaces make me happy. Adding a little sparkle—and even more color—to an outfit is something I do for myself, not to show off or impress others.NZ capsule wardrobe jewelry - 1

Yet another annoying side effect of systemic arthritis is the sometimes unpredictable stiffness in my fingers that makes tiny clasps difficult to manage. It’s no accident that all the earrings in my photo above are hooks that don’t require attaching itty bitty backs!

Add slightly paranoid tendencies to even mild physical disability, and I can end up feeling frantic* about a necklace that I can’t get off when I want it gone. This scenario triggers my claustrophobia, in fact.

For this reason—and because my only simple, black vinyl? pendant cord c. 1994? recently broke, leaving me with no aesthetically pleasing option for wearing a favorite amber bead—I went looking for a replacement with an easier to manipulate clasp. I wanted to upgrade to a thin, genuine leather strap with a magnetic fastener.

Et voilà!

Bracelet Street 15" black leather 3mm necklace with magnetic claspI turned to Etsy, though I often struggle on that site to identify actual self-employed artisans vs. foreign outfits with unknowable labor practices. I ended up buying two leather necklaces with magnetic fasteners made by Bracelet Street USA, a woman-owned business in Kentucky if I’m reading their About page right. I’ve had no personal contact with this company aside from making the single online purchase.

First, allow me to admit that I feel like an utter fool for having waited this long to seek out more manageable jewelry clasps. Obviously, it could be costly or impossible to retrofit a large collection of mostly inexpensive, costume jewelry, but there was nothing preventing me from making this useful discovery except my own lack of attention.

Sometimes, the steady barrage of failures that come from living with autoimmune disease can prevent me from even trying new solutions that turn out to be easy fixes.

When everyday life confronts you constantly with “trivial” activities you can no longer manage for yourself, it is easy to become disheartened and just give up on stuff. This sometimes applies to things you love. Even silly little victories—like wearing a favorite pendant—enhance the texture of life’s fabric, and are worth pursuing.Pendant necklaces: amber bead on black cord, ammonite fossil pendant on brown cord, blue stone on bronze cord

For those with fully able bodies, some of the visible manifestations of the Americans with Disabilities Act (ADA) can seem excessive or superfluous—“too many” empty handicapped spots in an otherwise packed lot, or the lift at the public pool that a healthy observer never sees used—but the reality is that, for those who have been cut off from so many common daily tasks, accommodations like these make the difference between feeling welcome to participate in the world at large…or not.

My new necklaces aren’t going to suddenly empower the disenfranchised or fundamentally change the world, but they do look nice, work precisely as they should, and offer me the dignity of doing one more thing for myself. That makes the purchase money well spent.Etsy order confirmation for two 3mm round leather necklaces with magnetic clasps

I ordered two magnetic clasp, 3mm diameter necklaces, one a #25 Natural Black (15 inch) and the other a #3 Bronze Metallic (18 inch), paying $26.56 including tax. I was sent a third (18 inch Metallic Tamba) for free as an unexpected “gift with purchase.”Bracelet Street 18" leather cord, magnetic clasp necklace with 3mm diameter in Metallic Tamba color

I’m assuming such little additions are par for the course with this company. Bracelet Street could have had no way of knowing I am a blogger** who might write about the purchase. I didn’t even login to my existing Etsy account since I was accessing the site from my phone instead of my desktop and I couldn’t remember the password. I wouldn’t have seemed like a special customer of any sort.

Bracelet Street USA shipped their products in sufficient, simple packaging that protected what was inside without creating too much superfluous waste. Each necklace came in a labeled mini zip top plastic pouch. I save these for use to keep earrings separate and chains untangled when I travel, so they will be re-used.

The inclusion of a hand-written thank you note made an impression on me, and very much increased my desire to share my positive experience with the company. I appreciate a human touch to my purchases, especially when I’m buying hand-crafted items online. I always hope I’m supporting small businesses with satisfied employees, but it can be so hard to tell who you’re doing business with on the web.

If you plan to wear an existing pendant with one of these magnetic clasp necklaces, be aware that I had to have a larger ring added to my amber bead in order for it to fit over either end of the Bracelet Street USA 3 mm leather necklace. The non-opening end of the simple metal “springring” clasp on my old vinyl cord was smaller.

Fortunately for me, my mother-in-law is a hobbyist jewelry maker, so it was easy for her to add a larger link to my pendant. Actually, I believe she gifted me all three of the pendants featured above on my new Bracelet Street necklaces. If, like me, you are buying magnetic clasp necklaces due to a lack of dexterity, you may need a friend or loved one to help you attach a larger bail to some of your own pieces to make them compatible with these thicker fasteners.Close up of Bracelet Street magnetic necklace clasp slot end

I would also like to add that the little bump or nubbin on the insertion side of the fastener is not a button requiring fine manipulation. I wasn’t sure how it worked when I first looked at it. The two ends of the magnetic closure will “snap” together on their own due to the magnet’s attraction, but you aren’t quite done when it does! A slight twisting motion slides the nubbin into the slot on the other side. This seems to provide extra security to what could otherwise be a “breakaway” clasp.

Breakaway jewelry might be ideal protection if you’re operating a lathe, but it’s kind of a bummer when you’re wearing the pendant great-grandma carried with her from the Old Country.

With a lightweight charm, I believe you could get away without the gentle twisting required to get the clasp fully closed, but I did have a heavier pendant (the ammonite fossil visible in my photo above) fall off into my lap before I’d quite mastered the fastening process. Since I learned to fully secure the clasps by twisting, this hasn’t happened again. To be clear, though, I rarely wear heavy jewelry as it exacerbates the discomfort from my systemic arthritis.

If you’re looking for a simple necklace that can be put on and taken off in spite of mild- to moderate-dexterity issues in your hands, I recommend those sold on Etsy by Bracelet Street USA. They are fairly priced, functional, and the company really seems to care about pleasing its customers. Each has a clean, simple aesthetic—appropriate for anyone, masculine or feminine—with 36 colors available in lengths ranging from 12 to 26 inches. I can’t speak to longevity after just a couple of weeks, but my initial impression of the three necklaces in my order is that they offer good quality for the price.

* Even my kids have been subject to my sudden demand to “help, help, help me get this off before I have to start yanking on it!” Since some of my jewelry was my departed mother’s finer stuff, ripping it apart would be less than ideal…

FYI, “Metallic Tamba” as a color name doesn’t mean much to me. I’d describe the shade as a multi-hued, warm-toned, mostly dark brown metallic melange

** Frankly, I’m also not a very significant blogger, so I’m not sure “knowing who I am” would have any effect on the way any merchant would treat me!

I had to look up the proper name for the round, metal circular fastener with the tiny lever you have to pull with a fingernail to open it, pulling an itsy bitsy wire out of the center of the hollow hoop. The internet told me it is a springring clasp, invented around 1921.

The best “Thermos” insulated food jar is a LunchBots brand Thermal

My search for a replacement insulated food jar when Thermos dropped the ball

I bought Thermos brand food jars in 2010, then again in 2015. These 10- and 16-oz jars have interchangeable lids and have served me well enough for a decade. After 10 years, however, I’m down to six jars and four lids having purchased seven in total between the two sizes.

Thermos insulated food jars, 10 and 16 ozYou can find reviews out there by people who have done scientific measurements of heat retention over time in this type of container, but my requirements are very simple. To wit, if I send a hot meal to school or work in the morning with my loved one, does the food stay warm and enjoyable until lunchtime?

Venerable Thermos brand no longer signifies quality

My first choice would’ve been keeping my existing jars in service with a few new replacement lids. Thermos in September 2020 replied to my email query, however, saying that I was out of luck. Thermos discontinued my jar model(s), and they have no replacement lids to offer.

I made it clear I would purchase lids if necessary, and that I was not asking for extended warranty coverage for old products. Thermos customer service appeared to give little attention to the details of my query; they don’t seem to care about my business.

I got a boilerplate email response indicating only that one item of the two I’d mentioned with model numbers and dates of purchase was out of production, and welcoming me to peruse their current offerings to find my own replacement. No notice was given to my specific question about sustainability or offering replacement parts in the longer term. No attempt was made to point me to the closest current model that might meet my needs.

Total customer service fail by Thermos!

Lids without plastic inside may be a healthier choice

Seeking a totally new product, I discovered that there was no Thermos food jar listed on their consumer site that day with stainless inside the molded plastic lid where it will touch the heated food therein.

BPA free plastic is a red herring; all plastic in contact with warm food should be viewed with caution, but not paranoia. The health effects of plastic use with hot food remain dubious yet suspect. Read up on this case of regrettable substitutes in National Geographic.

Instead of focusing on quality or innovation, Thermos seems to be competing with no-name international brands offering cheap products designed to fail and be quickly replaced. Today’s Taiyo Nippon Sanso* owned Thermos brand is obviously a poor fit for my eco-conscious, health-conscious consumer preferences.

I looked to a pair of modern, sustainable food container brands that I already trust for a suitable replacement to these insulated staples of my lunch-packing arsenal: LunchBots and U-Konserve.

LunchBots Thermal is the best insulated food jar for my family as of 2020

The best insulated food jar for my family turned out to be a LunchBots Thermal. I bought two, in September, 2020—one 12 oz and one 16 oz—from Amazon. I paid retail price, but I did use an Amazon coupon to save a few dollars off the order.

Amazon invoice for LunchBots order including Thermal food jar and insulated stainless steel water bottle Continue reading

Trampoline exercise to ease chronic pain & stiffness

A mini trampoline probably won’t solve your chronic pain issues. My JumpSport 550fi rebounder* has not cured my autoimmune disease, nor did I expect it to. What it has done is offer me is an opportunity to rise up from my seat and move in a way that doesn’t aggravate my sensitive joints.Hardback library book on JumpSport fitness trampoline to show relative size

JumpSport 550fi specs

I ordered my fitness trampoline from Costco.com and received it in mid-July, 2020. I believe the JumpSport 550fi model sold by Costco is simply the manufacturer’s 550f model with the optional Handlebar accessory included.

Here are the specs if you’re interested in the same rebounder I have:JumpSport 550f/fi specs including price, size, weight

My JumpSport 550fi came with two workout DVDs and a one year subscription for additional streaming content. The former was at an intensity too high for someone with my health issues, and I never attempted to access the latter. Watching the instructor led exercises on the disc was helpful for getting ideas about how I might adapt moves to my own level, however.

I wouldn’t go so far as to say I’m “bouncing my way to fitness,” but I am getting up off my backside and moving vigorously more often than I did without the trampoline. When even common, everyday tasks present you with physical challenges, this feels like a big win!

Recent studies suggest that even very sedentary people gain massive improvements in health and longevity from fairly small amounts of exercise. My personal goal is to always—every day, no matter how bad I feel—get my blood pumping on purpose for at least ten minutes. During pandemic lockdown, my fitness trampoline has become a key component in achieving that.

Continue reading